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NHS England has worked closely with people living with type 1 and type 2 diabetes, carers of those living with diabetes, healthcare professionals, and local providers to develop this survey. Together, they form the survey Advisory Group. Their experience has been key in shaping every stage of the survey. Below you can find out more about the Advisory Group and why the survey is so important to them.

“I strongly believe that all people living with diabetes should be given the right support to live a long and healthy life. But we know that there are inequalities in healthcare outcomes and experiences. This survey is our bridge to understanding the “why”. It will give people living with diabetes the chance to have their voice heard. The survey results will help us to understand the barriers that people face. This means that I, and other clinicians, can better support and communicate with people living with diabetes in the future.”

Dr Sophie Harris, Chair of the Advisory Group, Diabetes Clinical Lead and Consultant
Dr Sophie Harris

“As people living with diabetes, we have had significant input into how this survey has been put together. Our voices have helped to make this survey a relevant and important turning point in the improvement of care and support for everyone living with diabetes. By filling in the survey, your input will be added to our voices. Everyone involved in the provision of care for those living with diabetes will hear us loud and clear and know exactly where change is needed to provide the best possible diabetes care and support in our journeys through the NHS.” Andrew, on behalf of the partner team

“I joined this lived experience group as a carer of someone living with diabetes, to give my input to the questionnaire and bring experiences of the black and South Asian community to this survey. I am hoping this survey will put the patients’ voice at the heart of patient care for individuals with diabetes.” Ajanta

“I live with type 2 diabetes, and my initial experience and ongoing support fell short, but participating in an NHS diabetes services survey has been a valuable chance to contribute. Despite challenges, it highlights the NHS's commitment to improvement and offers individuals like me an opportunity to make a positive impact in diabetes care, maybe you could too by taking part in the survey.” Annetta

“I am 52 years old and was diagnosed with type 1 diabetes at the age of 13. Diabetes care has progressed during this time but there are still opportunities through enhanced healthcare to improve the quality of life for people living with the condition. My role in the Advisory Group enables my voice to be heard and helps to retain focus on the lived experience and what good support means to us.” Becky

“l am living with type 2 diabetes, a few years after I developed gestational diabetes. I have dedicated the last 18 months to a diabetes Advisory Group, together with other people living with type 1 and type 2 diabetes to develop a National Diabetes Experience Survey. I joined this group to ensure that people living with diabetes would be fully supported and receive guidance from clinicians, and for clinicians to be aware of the concerns they may have.” Carmen

“I've been living with type 1 diabetes for over 27 years. I am a member of the Advisory Group because I believe it is important for everyone living with diabetes to share their experiences on diabetes care so that our voices are heard, great care is celebrated and where improvements are needed our voices are shaping these.” Dan

“I’ve had good experiences of care since being diagnosed with type 2 diabetes at my local doctor’s surgery, but I know that other people haven’t had such a good experience. It feels great to be a part of this programme and contribute towards this survey, to help everyone living with diabetes have better outcomes.” Paul

Annetta, Carmen and Paul, Lived Experience Partners

Annetta Carmen Paul

Annetta, Carmen and Paul, Lived Experience Partners

Annetta Carmen Paul

“We are healthcare professionals working in both GP practices and hospitals, and some of us also have personal experience of living with diabetes. Gathering feedback on care is a top priority for us, and this survey is an amazing opportunity to hear from many difference voices. If you’ve been invited, we’d really appreciate you taking the time to take part in the survey. Your feedback will be vital in helping us understand what works well with diabetes care and what needs to be improved.”

Amanda Epps, Lead Nurse for Diabetes and Endocrinology

Dr Rebecca Haines, GP

Dr Alistair Lumb, Diabetes Consultant

Amanda Epps Dr Rebecca Haines Dr Alistair Lumb

Amanda Epps, Lead Nurse for Diabetes and Endocrinology

Dr Rebecca Haines, GP

Dr Alistair Lumb, Diabetes Consultant

Amanda Epps Dr Rebecca Haines Dr Alistair Lumb

“Understanding what matters to people with lived experience of diabetes is an important factor in shaping our services and better supporting people to live well with the condition. The survey is an opportunity for you to be heard and for us to take action, so please do get involved.” 

Corinne Robinson, NHS Gloucestershire Diabetes Senior Programme Manager
Corinne Robinson